Okay, if this is such a rare disease and fast killer, why is getting in to see a specialist so hard? I haven’t even made progress securing an appointment anywhere yet! I’ve sent my info to 2 different clinics that specialize in this disease, one is in Orlando the other is in Jacksonville. My case has to go through clinical review and be approved before I even get to set up an appointment… I feel like I have filled out applications to get into a college and I’m waiting for acceptance or denial letters. WTH? I’m assuming I’ve had all of the standard initial tests that showed I have it. I won’t know anything more until I get the right heart catheterization and any further tests to tell me why I have it, or, God willing, IF I have it. — Later that day — The prayers are working!!! I had tried the Mayo in Jacksonville and was told to call back in a few months to try to set something up. So in addition to calling the Mayo in Minnesota (where I was told they don’t take my insurance so go pound sand), I also asked for an appointment in Jacksonville using the online form but instead of Pulmonary, I tried for an internist. Well, I got a call!!! I actually said, “Praise You Jesus!” instead of “thank you” to her . I have had my records faxed to them for review and determination. Now I pray I am accepted to be able to request an appointment.
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Author's NoteThis is my personal journal as I navigate life. What I say is from my perspective, it is my truth. I realize the implications of this kind of honesty, it is risky. Welcome
If you have some kind of lung disease, maybe you can offer insight and resources. If you’re newly diagnosed, maybe some of what I post will resonate. About Me I turned 66 in December... Read More Categories
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